ABOUT MYALGIC ENCEPHALOMYELITS: A NEUROIMMUNE ILLNESS

Living With and Recovering From CHRONIC FATIGUE SYNDROME: 
DEBILITATING IMMUNOPATHIC RELAPSING ENCEPHALOMYELITIS (DIRE)"

by Helen Borel,RN,BA,MFA,PhD   PsychDocNYC.com
~ REGISTERED NURSE with Years of patient-care EXPERTISE & EMPATHY
~ PROFESSIONAL MEDICAL RESEARCH WRITER for decades
~ PSYCHOANALYST/PSYCHOTHERAPIST for 20+ years,
knowing the difference between psychiatric illnesses and physical illnesses
~ Dedicated to patient-care ALL MY LIFE

During TWO DECADES of my increasingly debilitating CFS/ME symptoms, I attended many scientific CFS meetings, researched hundreds of CFS scientific papers, carefully documented (as an ethical healthcare professional) all my own Myalgic Encephalomyelitis symtoms, and all my relapses, while writing this comprehensive book to help myself and, after being ridiculed by MDs, ER nurses, etc.(when consulted to treat my severe symptoms), I became determined to describe the entirety of this disease to the public...and to share any nursing care treatments I tried that worked with all my fellow-CFS/ME sufferers.

This required, though I'm a private person about private health matters, that I expose my own symptoms and sufferings, chart these and begin to try sensible, common medical-nursing treatments and chart them and observe my progress, then discard what didn't help and make note of every little and big observation I discovered.  It took about 6 months for many of the symptoms to abate and to decrease and even to eliminate the relapses or have longer "wellness gaps" between my relapses. But I kept at it for myself and ultimately to help other CFS/ME sufferers.  Following is a thorough SYNOPSIS OF THE CONTENTS OF THIS BOOK which appears on back cover.  

             BREAKTHROUGHS IN CFS RESEARCH 
                               AND TREATMENTS

                       Millions of CFS Patients and Thousands of Physicians will
                              Reap the Benefits of this Brand New Information

DESCRIPTION AND SUSPECT CAUSES OF CHRONIC FATIGUE SYNDROME
. Immunopathologies – Chronic Cytokine Overkill
. Encephalopathy – Relapsing Brain and Spinal Fevers
. Epstein-Barr and Cytomegalovirus Connections
. Rubella, Retrovirus and Human Herpesvirus-6 Connections
. Environmental Toxins

OTHER RELATED ILLNESSES OR CFS TRIGGERS
. Lyme Disease (neuroborreliosis), Viral Influenza, AIDS
. Multiple Sclerosis, Lupus, Radiation Sickness, Chemotherapy

CENTERS FOR DISEASE CONTROL (CDC) DIAGNOSTIC CRITERIA FOR CFS
. Commentary and New Theories
. No, It’s Not Depression!
. Laboratory Tests and Clinical Assessments

PROGRESSIVE CLINICAL DETERIORATION IN UNTREATED CFS
. CAT, PETT, MRI and EEG Anomalies of the Brain
. Exercise and Activity Intolerance
. Bedriddenness, Shut-In Life, Nonrestorative Sleep
. Relapsing Immunoviral Brain Fevers, Headaches, Nausea, Prostration
. Lupus-like Reactions to Sun and Heat Exposure
. Relapsing Herpetic Skin Lesions
. Work and Social Life Disruptions, and Job Loss

PHASES OF RECOVERY
. NEW MEDICATIONS
. MAJOR NEW TREATMENTS
. Quick Reference Guide to Treatment Strategies
. Basics for Enhanced Daily Living

                             100+ SCIENTIFIC AND MEDICAL REFERENCES
 
                                     EXTENSIVE MEDICAL GLOSSARY*
                       *with detailed translations for general and medical readers

     *The compleat CFS compendium./ Essential for patients, nurses, doctors, personnel managers, health insurers, researchers and those with other immune system disorders.
 
Link to my pertinent short article in the BRITISH MEDICAL JOURNAL
http://www.bmj.com/rapid-response/2011/11/01/cfs-guidelines-irrelevant-actual-me-disease